You are here

What is the IDF Primary Immunodeficiency Conference?

The Immune Deficiency Foundation (IDF) Primary Immunodeficiency Conference is our preeminent event held biennially and is a platform for all facets of the primary immunodeficiency (PI) community. From physicians to nurses to specialized life management experts, people with PI and families have an unsurpassed opportunity to network with those on the cutting edge of research and treatment. The IDF Primary Immunodeficiency Conference brings together individuals from all sectors of the PI community.

The conference features opportunities for learning, discussing, and sharing for all ages. World-renowned immunologists are on hand to share their time and expertise. Families benefit from meeting other families and enjoy the festivities of social events, as well as learn from organizations and companies in the interactive Education Hall.

When and where is the IDF 2021 Primary Immunodeficiency Conference?

June 23-26, 2021, we will be held virtually this year.

When can I register?

Registration will open in the Spring of 2021. Be the first to get updates about the conference by signing up for event alerts through your IDF My Account.

What sessions will be available?

There will be something for everyone! World-renowned healthcare professionals will share their time and expertise to help you better understand and manage your primary immunodeficiency (PI). Learn from life management professionals who will provide you with ideas you can incorporate into your daily life. Meet and talk with others from the PI community, and share your experiences throughout the weekend.

Who will be there?

Everyone! As the largest gathering for people living with PI in the world, there is always a great turnout. Individuals, families, and friends living with PI, healthcare professionals, and from organizations that provide services to the community will be in attendance. Here is a breakdown of who attended the last conference:

IDF 2019 National Conference Stats
1,261 attendees
First-time Conference Attendees: 572
First-time IDF Event Attendees: 327
46 different states represented
9 different countries represented

What will I learn?

Attendees learn about scientific advancements in the diagnosis and treatment of PI, and gain the skills needed to manage their healthcare. There are sessions for specific diagnoses, life management skills, treatment types, and more. In 2019, we had 85 educational sessions, and plans are underway to have a similar amount of sessions in 2021.

What are the costs?

Funding from generous supporters of the Immune Deficiency Foundation (IDF) Primary Immunodeficiency Conference enables us to offer extremely reduced fees to our conference attendees. With three days of programming, there are still costs to be incurred by attendees. The Registration Fee includes access to all sessions and special events. More information regarding pricing will be available in early Spring 2021. 

Will there be assistance to cover fees?

Yes. More information about scholarships to the Primary Immunodeficiency Conference will be available closer to the opening of registration.

Will there be a program for children and teens?

Yes! The IDF Youth & Teen Program is exclusively for children and teens, ages 6 months to 18 years, diagnosed or who have an immediate family member with a primary immunodeficiency disease (PI). Fun, age-appropriate activities and educational sessions are planned for all ages. Attendees will be divided into groups by age. This program fills up quickly. Therefore, onsite registration is not available for the program, and it is not available to commuters. The Youth & Teen Program is not included in the registration fee; it is an additional $100 per child for two days (Friday and Saturday). Parents of teens, ages 13+, will have the opportunity to provide permission for their teen to check themselves in and out of the IDF Youth & Teen Program, which will enable this group to attend sessions of interest in the adult program. 

How can I get updates on the IDF 2021 Primary Immunodeficiency Conference?

Use your IDF My Account! We can’t e-mail you about the conference unless you have an IDF My Account and are subscribed to “IDF Events.” If you do have an IDF My Account, log in, scroll down to “My E-mail Subscriptions” and subscribe to “IDF Events.” If you have not created an account yet, get started! For support or questions regarding how to create an account or update an existing account, contact us.

How do I exhibit at the conference? 

We welcome organizations and companies who provide a product or service to the PI community to exhibit in our Education Hall, where patients and families can learn about resources to help them live better lives. For sponsorship and exhibitor information, click here to contact us.


Is there a dress code?

All sessions are casual attire. There are events, however, where we ask for festive attire, and anything zebra print is always welcome! Please note that all conference sessions will be held in hotel meeting rooms, which are air-conditioned and often chilly. So, it is highly recommended to bring along a light jacket or sweater to the session rooms.

What meals will be provided?

The registration fee covers breakfast, lunch and dinner on Friday, and breakfast and lunch on Saturday. Attendees are encouraged to make their own dinner plans for Thursday and Saturday nights. If you have dietary restrictions, we strongly encourage you to let us know when you register.

Can I volunteer at the conference? 

Volunteers are essential to everything we do at IDF—including the Primary Immunodeficiency Conference. If you are interested in volunteering, click here to contact us.


Want to get notifications about the IDF 2021 Primary Immunodeficiency Conference? Make sure your information is up-to-date, including your email address, mailing address, diagnosis of person with PI, and year of birth of person with PI. These pieces of information allow us to contact you with information relevant to you and your family. In addition, we will not be able to e-mail you unless you have an IDF My Account and are subscribed to “IDF Events.” If you do have an IDF My Account, simply log in, scroll down to "Household" and edit your information. While you're logged in, scroll down to “My E-mail Subscriptions” and subscribe to “IDF Events” to subscribe to updates. If you have not created an account yet, click here to get started!

Back to IDF Conference Home