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April 13, 2021

Leadership Update: Q&A


IDF EMAIL UPDATE   QUESTIONS AND ANSWERS Has there been a transition in IDF leadership? John Boyle stepped down from his role as CEO after nine years of dedicated service to IDF, including three years as CEO. John and the Boyle family have been an important cornerstone of the foundation’s legacy. He will remain a tireless advocate for the PI

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April 09, 2021
SCID, SCID Compass

Shape the Future of SCID Compass


Would you like to have a significant impact on the direction of the SCID Compass program? We promise it’s quick and easy and will only take a few minutes of your time. The SCID Compass program recently launched its SCID Demographics and Programming Questionnaire. The survey contains about a dozen questions designed to find out what type of

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March 31, 2021

Donor Spotlight: Joy Johnson

POSTED BY: rdelaney

Joy Johnson is no stranger when it comes to primary immunodeficiencies (PI). Joy was first diagnosed with Common Variable Immunodeficiency (CVID) five years ago and was overwhelmed trying to figure out how she would cope with the disease for the rest of her life. In addition to her diagnosis, Joy’s nine-year-old daughter was diagnosed with a mild

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March 30, 2021
Living with CGD

Determined to Keep Moving Forward


In 1982, Antony and Alphonsa Raj sold everything they had and took their 7-year-old daughter Susanna to Canada, days after their youngest son, Savio, 6, died from infections resulting in fever, lung lesions, and kidney problems. Susanna also suffered from constant infections, and her older sister Sharmila died from infections at age 6. Doctors in

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March 25, 2021

Urgent: Biologic Withdrawal Information for Gamunex

POSTED BY: mtewey

Grifols Therapeutics LLC has initiated a voluntary withdrawal of Gamunex™

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